Living life undone

  What can I say??     Any words I have will pale in comparison to how deeply touched and grateful Matt and I are feeling.     It feels like anything we could possibly say, cannot fully express how deeply touched we are.     There is a saying that says, “when it rains look for rainbows and when it’s dark look for the stars.”     Thank you for being our rainbows and stars.   This blog post is not like the others.  There is no update on Kaleb… that one will come later in the week.  This blog post is about YOU our village.  These past 2 months have been a rollercoaster for us.  Life is not always fair, life can be hard, but I believe it was never meant to be done alone.  All to often we want our world to be wrapped up into a pretty package with the perfect bow. Not all undone and messy for the world to see. Leaving us to feel exposed and vulnerable.  But we have learned that there ...

  Wow we have made it, Kaleb had the last dose of chemo for cycle 2 yesterday.  Yes I know that we still have many more to come but for this one small moment I need to stop breathe and be thankful.  Kaleb has not been hospitalized, he is keeping his spirits up and we have had a village of people coming along side with us through our journey. ok.... now the update. We headed out on our drive early in the morning and Kaleb (having had a horrible sleep) tried to sleep most of the way.  We stopped part of the way there so that Kaleb could take his meds and then fall back to sleep.  Arriving at the hospital, our wait was longer than normal to get past the screening lines. A delivery person standing behind us kept getting closer to Kaleb (clearly not staying 6ft away and was unmasked) so I had Kaleb stand in front of me so that there was a little buffer room.  Once we made it through screening and before heading into the PMDU Kaleb and I grabbed a quick snack fro...

 Why has this blog post been so hard to write this week??  It's not like we have any big news to share, we are taking everything in stride and life continues on.  Yet, I have been trying/struggling to write this for almost a week and even still nothing seems to want to flow easily.  Maybe because it's hard to always keep a positive light mood to what is going on... the honest truth is this cycle has been a bit of a mental challenge.  None of us wanted to go to London. The hotel stays have already lost their thrill and we now know what treatments are like and how Kaleb reacts to the meds.  While we were in London for Kaleb's 5 days of treatments, Matt was not given clearance to come into the hospital to be at Kaleb's treatments.  Only the primary parent is allowed in right now due to Covid protocols (meaning I am the only parent talking to Drs. and medical staff getting information and making decisions on the fly when needed.) Last cycle they made an ex...

 Hey Everyone!  I thought I would pop on and surprise you all with a little mid week update.  Kaleb's treatments have been going well and he has been staying mostly positive.  Being tired has been the theme of this week.  I don't think I have ever known Kaleb to nap as much as he has this past week!!  He always was my kiddo that refused to sleep day or night!  Taste buds again are changing and what food worked last cycle is no longer working this cycle.  He is eating far less than before and that has me worried.  We will see the dietician later this week.   School this week has been a bit of a challenge, it's not the way we ever pictured him learning but he has made the best of it.  Mental fatigue and concentration are symptoms that Kaleb has to deal with due to the chemo and meds he has to take.  He has been able to work a little bit at a time and is getting closer to completing an assignment in his one course.  (He is st...

 We made the trip to London yesterday afternoon so that we would have a chance to settle in and get our bearings.  ChildCan really came through for us and we were able to get into the Lamplighter. It seems like everywhere has really cracked down on their policies regarding being double vaccinated.  Being so close to the hospital really helps calm nerves as we know if something were to go wrong we are only 2 mins down the road from the hospital.   A goodnight's sleep was a blessing as we woke up refreshed and somewhat ready to tackle the day.  As we were on our way to the hospital I received a call from the "border crossing agency" telling me that a parcel I had apparently ordered had illegal items in it. So my supposed parcel had been seized and I am now a wanted person with the FBI.   LOL 😂 thank you scammers for the giggles this morning!!  When we arrived at the hospital there was a line up out the door and down the sidewalk area. It was a good thin...