Posts

Showing posts from November, 2021

half way there

Image
 Well we are officially half way there.  Kaleb Matt and I are in London once again for the start of cycle 4.   We were able to enjoy a full 2 weeks at home with no travel and no major concerns.  During those 2 weeks we were able to get all of us doubled vaccinated (yes even Kaleb).  Thankfully the kids did not have any big reactions... I on the other hand struggled with energy/fatigue, headaches and pain at the needle site for several days/ over a week.  Matt and I celebrated 20 years of marriage and hung curtains to mark the occasion ... lol I know so romantic!  Kaleb had visits form the VON nurse to change his PICC line bandages. We were able to pull out our Christmas decorations and get started on making our home feel more festive.  We received a few special surprise drop offs from friends and family. Kaleb and Libby both got their report cards and Kaleb was able to manage 2 full days of classes back to back before hitting a minor crash!  ...

9 hours...but we made it

Image
  And we are back!     Monday was a LONG day … 9hrs long.     We arrived in London on Sunday, as we knew to expect a long appointment day on the Monday.     After checking in, we discovered that we had a room with a view of the pool and a balcony to sit on and enjoy the sounds of the waterfall!     Such a nice change from what we have had. The last few times we have had a view of the parking lot… not too exciting to look out of, so this was an unexpected and welcomed surprise!     After getting something to eat, we pulled out Uno Flip (a new card game) and had a great night laughing and enjoying some competitive banter!       Due to the time change it actually felt like we slept in!  After eating some leftovers for breakfast, we headed to the hospital.  It was crazy busy!!  Line ups of people from the hospital out the door and all the way into the parking garage. Out front (where Matt dro...

There are battles to still be won, but we are winning the fight!

Image
The End of Cycle 2 meant that it was time to have more tests done to see if the cancer was dying or growing and spreading.  Thursday Matt and Kaleb headed into London for the day so Kaleb could have a PET CT Scan done.  The boys decided to take the truck, as it has a working sound system and its more comfortable for Kaleb.  Once they were done hitting the tip of the antenna on every single support beam in the parking garage they made it to the roof to park.  (insert me shaking my head)  Kaleb had to fast for this test so with a grumbling hungry stomach, they headed into St Joseph's hospital where Kaleb gave the "Jesus" statue a high-five and reported to the imaging unit.  The test takes 3 hours to complete so once they were done they headed off in search of food and then headed home.  Our weekend became a waiting game and we all seemed to feel the stress of Monday(today) looming.   Sunday we headed back to London early so that we would not be dodg...